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The relationship between philosophical ethics and medical practice weighed heavily on mind after reading this book. As I worked my way through the chapters, I found myself constantly recalling something that Frances Kamm once said when asked about the practical value of ethics:. .. people come to philosophy for practical guidance, certainly in bioethics. We now even have philosophers on medical wards, wearing beepers, who get asked by doctors 'Come advise me whether I should pull the plug on this person's ventilator'. I have never done that. I tried teaching at the medical school at NYU, but they were more interested in answers to specific real-life cases and I was more interested in theoretical issues that related to questions of practical import. " 1 Kamm's comment reveals certain tensions inherent in the discipline of medical ethics. In particular, tensions between the drive for theoretical sophistication and purity, on the one hand, and the drive for practical significance on the other. Academic monographs, of course, tend toward the former, while textbooks arguably tend toward the latter. But the tensions are always present and there is an important question as to whether ethics can, in the words of James Rachels, provide the answers for which people are looking. The book under review manifests these tensions rather exquisitely. Ostensibly, this is a textbook which aims to be of great practical significance. Written for healthcare professionals dealing with end-of-life care, the book is structured around eight modules, dealing with a range of practical topics such as " The Ethics of Breaking Bad News " and " The Ethics of Managing Pain ". One imagines the goal therefore must be to equip medical centres, hospitals and hospices with their own " philosophers with beepers " , ready, able and willing to advise on all manner of end-of-life care decisions. But one would be wrong, for this book does not aim to provide direct guidance to healthcare professionals. Instead, it aims " not to tell people what to do, but to offer tools for thinking about difficult problems " (14). Pedagogically speaking, this is an appropriate aim. And the educational philosophy behind the book specifically proclaims that the job of ethics and ethicists is to negotiate disagreements, not to resolve uncertainty (14). But one is left wondering whether this would be satisfying to the students participating in these modules. Would they be pleased to learn that there are arguments for and against breaking bad news to patients (81-105) and the decision of whether to inform a patient will depend on how one weighs competing ethical considerations? Would they, like Kamm's students back in NYU, not long for answers to real-life cases?
2019
The Ethical Framework for End-of-life Care is part of a national programme, the Hospice Friendly Hospitals Programme (HfH) of the Irish Hospice Foundation, which is intended to improve the culture of care and organization regarding dying, death and bereavement in Irish hospitals. The Framework is an educational resource that consists of eight Modules of Learning for health professionals, patients, families and the general public. The Framework is the outcome of a unique collaboration between University College Cork, the Royal College of Surgeons in Ireland and the Irish Hospice Foundation, with contributions from ethicists, legal experts, theologians, sociologists and clinicians. It draws on a range of values and principles that have been identified as important considerations in end-oflife decision making by international experts in bioethics and by professional codes of conduct, policy documents and laws. It is also informed by extensive international research on patients' and...
2000
In the Australian context, nurses have an imperative role in the healthcare team to effect a good death for individuals and their family. Although there is limited agreement on a single definition of a ''good death,'' the following common elements from 42 reviewed articles on the topic provide insight. These are being in control, being comfortable, sense of closure, affirmation/value of the dying person recognized, trust in care providers, recognition of impending death, beliefs and values honored, burden minimized, relationships optimized, appropriateness of death, leaving a legacy, and family care. 1 Nurses have a role in relation to end-of-life care in a variety of clinical settings, including acute and subacute care contexts and palliative or end-of-lifeYspecific settings, like hospice units. 2 Although all nurses may and can care for dying patients, incorporating a palliative approach to care, palliative care nurses work with and care for persons and their families with a life-limiting illness. 2 These specialist nurses work in many areas and have different responsibilities, including direct care, education, consultation and expert advice, and policy development. 2 The intersection of practice realities and challenges of our vast country, including rural and remote communities, and what this means for the person, religious, cultural, and individual wishes of the patient and their family, the interface with other healthcare professionals, and laws and codes of professional behavior present potential ethical issues and challenges for the nurse. 3 The professional practice context of nursing in Australia is dictated, in part, by the Code of Ethics. 4 This Code of Ethics provides overarching require-Author Affiliation: Registered Nurse and Independent Consultant, Western Australia. The author reports no conflicts of interest.
Online Journal of Health Ethics, 2019
Objectives—To assess whether UK and US health care professionals share the views of medical ethicists about medical futility, withdrawing/withholding treatment, ordinary/extraordinary interventions, and the doctrine of double eVect Design, subjects and setting–A 138-item attitudinal questionnaire completed by 469 UK nurses studying the Open University course on " Death and Dying " was compared with a similar questionnaire administered to 759 US nurses and 687 US doctors taking the Hastings Center course on " Decisions near the End of Life ". Results–Practitioners accept the relevance of concepts widely disparaged by bioethicists: double eVect, medical futility, and the distinctions between heroic/ordinary interventions and withholding/ withdrawing treatment. Within the UK nurses' group a " rationalist " axis of respondents who describe themselves as having " no religion " are closer to the bioethics consensus on withholding and withdrawing treatment. Conclusions—Professionals' beliefs diVer substantially from the recommendations of their professional bodies and from majority opinion in bioethics. Bioethicists should be cautious about assuming that their opinions will be readily accepted by practitioners.
This book offers an Ethical Framework for end-of-life decision making in healthcare settings. The Framework, consisting of eight Modules of Learning, is a set of educational resources for health professionals, allied professionals, healthcare ethics and law lecturers and students. It aims to foster and support ethically and legally sound clinical practice in end-of-life treatment and care in Ireland.
Best Practice & Research Clinical Anaesthesiology, 2006
Frequently, ethical dilemmas for clinicians in ICU focus on the conflict between the sanctity of life principle and other important ethical principles, such as patient autonomy or quality of life. Therefore, this chapter seeks to reveal the ethical tension between the sanctity of life and other competing ethical obligations, clearly outlining how the law in reality is making decisions and what a clinician's duties are in end of life issues.
Trends in Anaesthesia and Critical Care, 2016
Medical ethics has evolved from paternalistic to patient-centred. Emergency and end-of-life situations are frequently associated with inability to make informed decisions. Respect for advance directives, proxy informed consent for therapeutic/research interventions, do-not-attempt resuscitation orders, and withdrawal of life-sustaining treatment focus on autonomy and nonmaleficence. Beneficence is increasingly interpreted in terms of "achieved quality of life" following emergency treatment/resuscitation. Justice pertains to equality of access to best available care, which depends on patient age, comorbidity, preferences, socioeconomic status, race, ethnicity, and religion. Dignity includes the concept of "dignified death;" the still-debated practice of physician-assisted death is gaining ground. Honesty/ transparency augments patient participation in shared decision-making and treatment selection. A stillprominent, international variation in bioethical principles interpretation mandates continuous effort for harmonization.
Research Article, 2024
Background The swift advancement of intensive care medicine, coupled with technological possibilities, has prompted numerous ethical inquiries regarding decision-making processes concerning the withholding or with- drawal of treatment due to medical futility. This study seeks to delineate the decision-making approaches employed by intensive care physicians in Türkiye when faced with medical futility at the end of life, along with an ethical evalua- tion of these practices. Methods Grounded theory, a qualitative analysis method was employed, conducting semi-structured, in-depth interviews with eleven intensive care physicians in Türkiye. The subsequent text analysis was carried out using MAX- QDA software. Results Participants assert that the decisions made by Turkish physicians determine whether treatment is futile, rely on medical consensus, and lack a standardized decision-making process. The decisions are influenced by legal and social pressures, resource constraints, and occasional conflicts of interest. The significance of professional hierar- chy is notable, with limited consideration given to the opinions of nurses and other staff. The unstructured medical consensus processes are shaped by normative concepts such as benefit, age, justice, and conscience. Furthermore, it was observed that the conscientious opinions of physicians carry more weight than adherence to ethical principles and guidelines. Conclusion To create optimal conditions for doctors to make ethically justifiable decisions, the dynamics within the treatment team should be improved, emphasizing the minimization of hierarchy, and ensuring the active participation of all team members in the decision-making process. Additionally, efforts should be directed toward nar- rowing the gap between the conscience of the individual doctor and established ethical principles. A potential solution lies in the nationwide implementation of clinical ethics committees and the establishing of clinical ethics guidelines, aiming to address, and overcome the identified challenges. Keywords Intensive care ethics, End-of-life decisions, Medical futility, Conscience, Culture, Grounded theory
Book Publisher International (a part of SCIENCEDOMAIN International), 2022
This article aims to make an ethical and legal reflection on end-of-life care, specifically on life-prolongation resulting from technical and diagnostic investment in current health care. This practice called dysthanasia, which in practice is also known as therapeutic obstinacy or futility in care -which is still present in health care -is well described and censored in the deontological codes of doctors and nurses and legal texts (specifically in Portugal). However, despite these documents and the national and international guidelines that contribute to preventing this phenomenon, we conclude that in parallel we need to promote death education -especially end-of-life bioethical issues -, for health professionals in particular, and society in general. The awareness of this issue, through education, will contribute to the empowerment of citizens, more humanization of health care, and, above all, a way to prevent the acts of prolonging the dying process.
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